About Sophie

Sophie is the pseudonym of our webmaster, mother to a ticapalooza-fantastic teenager.

Fantasy Island Picnic 2018

Friday, August 24, 2018
11 am to ?? (park closes at 8 pm)
Fantasy Island Amusement Park
Grand Island (Western NY)

Sponsored by:

The Tourette Association of Greater NY State

Family Picnic – Fantasy Island Amusement Park

$16 per person price includes unlimited ride passes to the park and water park, hot dogs, salads, drinks, snacks and desserts

Please bring a
dessert, snack or salad to share

You must pre-register by August 21, by filling out page two of the flyer

Free Superhero Movie Night

Saturday, August 4, 2018
5:30 to 9:00 pm
Calvary Episcopal Church in Williamsville

Sponsored by:

The Tourette Association of Greater NY State and Kiwanis Club of Amherst

FREE Superhero Movie Night

(Title TBA)

Hot dogs, burgers, popcorn, etc., will be served

You must RSVP by August 1, by filling out page two of the flyer

Youth Ambassador Summer 2018

Congratulations to Ezra Daly-Griffen !!

This year the Tourette Association of America is hosting a second Youth Ambassador Training. TAA of Greater NY State is very proud to announce that one of our youth members has been selected to attend this training. Congratulations to Ezra Daly-Griffen of South Dayton, NY. Ezra is a student at Pine Valley Central Schools.   For those of you who have attended Camp Ticapalooza, you will surely remember Ezra, our fabulous drummer. Ezra has been very involved in our chapter for several years, coming to many of our chapter events, sitting on a youth panel at a conference for educational personnel, and attending our camp annually. He is always willing to volunteer and lend a helping hand with whatever needs to be done. This training will be held July 13-14, 2018 in San Antonio, Texas. Ezra will be traveling to San Antonio with his mom, Jessamine, one of our long-time and fabulous camp counselors. Ezra’s older sister, Willow, was selected as the chapter Youth Ambassador in 2016 and attended the training in Washington, DC.

We wish Ezra and his mom safe travels to San Antonio and our congratulations on being selected to represent our chapter.

We are so very proud of you, Ezra!!

Youth Ambassador 2018

Congratulations to Miki Brauch !!

Miki Youth Ambassador 2018

TAA of Greater NY State would like to announce our selection for Youth Ambassador for 2018, Miki Brauch.  Miki is the daughter of Robert and Midori Brauch and is a 16 year old junior at Williamsville East High School outside of Buffalo.  She will travel to Washington, DC with her mom in February to attend the TAA Youth Ambassador Training Day.  She will also be spending a day at Capitol Hill with all of this year’s Youth Ambassadors from across the country to lobby for causes that affect all persons with TS.  We had several excellent applicants this year, which made the committee’s choice very difficult.  We thank all of the youth who applied.

Miki has attended our chapter’s Camp Ticapalooza for several years, has spoken on youth panels for chapter workshops, maintains a high academic record and is a great advocate for herself and others. We are very proud of Miki and know that she will do a fantastic job representing our chapter in DC and beyond.

Western NY Support Group Announces 2018 Meetings

The Western NY Support Group will be meeting on the 4th Tuesday of each month. Two groups meet simultaneously, one for parents/adults and a supervised activity group for kids.  Times, dates and location are listed below.

Western NY Support Group Meetings

Kenmore Library

160 Delaware Rd., Kenmore, NY

7:00 – 8:30 PM

The first three meetings have been scheduled for

Tuesday, January 23

Tuesday, February 27

Tuesday, March 27

We will be listing the meeting dates for our other support groups across the state in the near future.

We are also planning a bowling party in the Western NY area for later this month.  We will be confirming the date, time and location in the next couple of days and will email everyone on our membership list a flyer with all the details.

We hope to see many of you at all of our upcoming events.