Youth Ambassador Summer 2018

Congratulations to Ezra Daly-Griffen !!

This year the Tourette Association of America is hosting a second Youth Ambassador Training. TAA of Greater NY State is very proud to announce that one of our youth members has been selected to attend this training. Congratulations to Ezra Daly-Griffen of South Dayton, NY. Ezra is a student at Pine Valley Central Schools.   For those of you who have attended Camp Ticapalooza, you will surely remember Ezra, our fabulous drummer. Ezra has been very involved in our chapter for several years, coming to many of our chapter events, sitting on a youth panel at a conference for educational personnel, and attending our camp annually. He is always willing to volunteer and lend a helping hand with whatever needs to be done. This training will be held July 13-14, 2018 in San Antonio, Texas. Ezra will be traveling to San Antonio with his mom, Jessamine, one of our long-time and fabulous camp counselors. Ezra’s older sister, Willow, was selected as the chapter Youth Ambassador in 2016 and attended the training in Washington, DC.

We wish Ezra and his mom safe travels to San Antonio and our congratulations on being selected to represent our chapter.

We are so very proud of you, Ezra!!

Gute Reise, Trevor Scott!

TAA of Greater NY State would like to congratulate one of our graduating seniors for some outstanding accomplishments and exciting new adventures. Trevor Scott will graduate next weekend from Onondaga High School near Syracuse.   Trevor’s path has never been easy.   Due to his severe TS symptoms, including coprolalia, he has experienced bullying, teasing and discrimination since I first met him when he was 8 years old. I cried many times after leaving whatever school he was in. I have often wondered where the strength came from, to carry him through these extremely difficult years. Despite all of this adversity, he is graduating high school with honors.  He has been selected as one of our chapter Youth Ambassadors, has sat on panels to educate other people about TS, has attended our annual Camp Ticapalooza for many years, and will be back next year as a junior counselor.  Last year he joined me and two other young adults with TS to speak to the law students at Syracuse University about living with TS.

Trevor’s one dream in life was to travel to Germany on an exchange program. He has been studying German throughout middle and high school and it’s been one of his favorite classes. He applied for the exchange program last year and was told that he could not go because of his severe tics. He was not willing to give up that dream and decided to apply again this year, even though he would have already graduated by the time the trip would take place. His new German teacher not only accepted him but also contacted me to learn everything he could about TS so that Trevor’s trip would be successful and without incident.

In July, Trevor will embark on a month long exchange trip hosted by his school where he will be spending two days in Reykjavik, Iceland, a week in Berlin, and two weekends in Uelzen, in northern German, with a host family. Not surprisingly, he has arranged in advance to do a presentation on TS for the German students at their partner school, Lessing Gymnasium. Trevor will be the only senior on the trip.   He will be attending college in the Syracuse area next year. Pictured here is Trevor and his mother, Shannon, near the Capitol Building in Washington, DC, during his Youth Ambassador training. Please join me in wishing Trevor “Gute Reise” as he heads off to Germany. To all of you dealing with TS on a daily basis, “Don’t ever give up on your dreams.” And to Trevor, you are my hero! Have the time of your life.

Youth Ambassador 2018

Congratulations to Miki Brauch !!

Miki Youth Ambassador 2018

TAA of Greater NY State would like to announce our selection for Youth Ambassador for 2018, Miki Brauch.  Miki is the daughter of Robert and Midori Brauch and is a 16 year old junior at Williamsville East High School outside of Buffalo.  She will travel to Washington, DC with her mom in February to attend the TAA Youth Ambassador Training Day.  She will also be spending a day at Capitol Hill with all of this year’s Youth Ambassadors from across the country to lobby for causes that affect all persons with TS.  We had several excellent applicants this year, which made the committee’s choice very difficult.  We thank all of the youth who applied.

Miki has attended our chapter’s Camp Ticapalooza for several years, has spoken on youth panels for chapter workshops, maintains a high academic record and is a great advocate for herself and others. We are very proud of Miki and know that she will do a fantastic job representing our chapter in DC and beyond.