Gute Reise, Trevor Scott!

TAA of Greater NY State would like to congratulate one of our graduating seniors for some outstanding accomplishments and exciting new adventures. Trevor Scott will graduate next weekend from Onondaga High School near Syracuse.   Trevor’s path has never been easy.   Due to his severe TS symptoms, including coprolalia, he has experienced bullying, teasing and discrimination since I first met him when he was 8 years old. I cried many times after leaving whatever school he was in. I have often wondered where the strength came from, to carry him through these extremely difficult years. Despite all of this adversity, he is graduating high school with honors.  He has been selected as one of our chapter Youth Ambassadors, has sat on panels to educate other people about TS, has attended our annual Camp Ticapalooza for many years, and will be back next year as a junior counselor.  Last year he joined me and two other young adults with TS to speak to the law students at Syracuse University about living with TS.

Trevor’s one dream in life was to travel to Germany on an exchange program. He has been studying German throughout middle and high school and it’s been one of his favorite classes. He applied for the exchange program last year and was told that he could not go because of his severe tics. He was not willing to give up that dream and decided to apply again this year, even though he would have already graduated by the time the trip would take place. His new German teacher not only accepted him but also contacted me to learn everything he could about TS so that Trevor’s trip would be successful and without incident.

In July, Trevor will embark on a month long exchange trip hosted by his school where he will be spending two days in Reykjavik, Iceland, a week in Berlin, and two weekends in Uelzen, in northern German, with a host family. Not surprisingly, he has arranged in advance to do a presentation on TS for the German students at their partner school, Lessing Gymnasium. Trevor will be the only senior on the trip.   He will be attending college in the Syracuse area next year. Pictured here is Trevor and his mother, Shannon, near the Capitol Building in Washington, DC, during his Youth Ambassador training. Please join me in wishing Trevor “Gute Reise” as he heads off to Germany. To all of you dealing with TS on a daily basis, “Don’t ever give up on your dreams.” And to Trevor, you are my hero! Have the time of your life.

Upcoming Central NY Workshop

Is your child with neurological disorders struggling in school?
 
Are you struggling to obtain appropriate services and accommodations for your child?
 
This is a must attend workshop!!!
 
Saturday, May 23
Baldwinsville  Library
10:00 AM – 3:30 PM
Only $6.00 (for lunch and coffee and electronic handouts)
 
We will be discussing Tourette Syndrome, ADHD, OCD, ASD, Anxiety, Dysgraphia, Executive Dysfunction, Sensory Processing Disorder, Rage, Learning Disabilities, etc.
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Snowmobile Riding Event

On Saturday, February 7, our Central NY Support group participated in a Snowmobile Riding event hosted by the Town of Clay Recreation Department for children of all ages with disabilities. Several kids from our CNY group attended with their parents and had a wonderful time taking several rides each acrossthe snowmobile trails after which they were treated to pizza, cookies, hot chocolate and other treats. Thanks so much to the

Town of Clay for hosting this terrific event. See pictures of kids from our chapter who attended.

 

CENTRAL NY: 6th Annual Snowmobile Ride for children with special needs

The Town of Clay Recreation Department will be hosting the 6th Annual Snowmobile Ride for children with special needs ages 3 to 18.  This is a great opportunity for parents or organizations that provide for the needs of special needs children to allow them to ride with experienced riders.  The Central NY Support Group of TSA of GNYS is forming a group to attend this event.

Our group will be gathering at 10:30 at the Town Hall.  The address is below. This will be a great fun event and a chance for families to meet other families and for kids to meet and/or reunite with other kids with TS.  We hope to see a lot of you there. The Town Recreation Office will have hot chocolate, soft drinks, doughnuts, pizza and water for participants.  There is no charge for this event.

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To register:

Fill out the attached  form and email it to Kara Morgan at the email address provided on the flyer.  Kara will be the group leader from the chapter at the event and will have a sign from TSA so that people can find her when they arrive.  

Location:

Town of Clay Town Hall

4401 State Route 31

Clay, NY 13041

Understanding Diploma & Credential Options for Students with Disabilities

A workshop for Parents and Professionals sponsored by The Mid-State Special Education Parent Technical Assistance Center at Syracuse University and The Family Resource Network, Inc.
Have you heard about the new Diploma and Credential options for students with disabilities? This training will provide families with important information to help them understand these options to become an active participant in the transition planning process.
Participants will understand:

•The current Graduation/Diploma options in NY State;
•The current Credential/Exiting Options in NY State; and
•The importance of Career Development Occupational Studies integration

Date: January 15, 2015
Time: 10 AM to 12 PM
Location: Child Development Council
609 West Clinton Street Ithaca, NY
This event is free and open to the public, but registration is required. To RSVP via email send your name and contact number toregister@familyrn.org.
Please put Diploma on the Subject line of your email.
To register via phone call 607-437-0077.